On September 30, 2009 my newest niece, Ella Pearl, was born.
Ella was born with a chromosomal defect called Trisomy 18. Only about 5% of babies with Trisomy 18 make it to a live birth. Ella has several heart defects, trouble breathing on her own and a few other challenges associated with this syndrome. Trisomy 18 babies do not have a long life expectancy.
Last week I was thrilled to be able to travel to meet Ella, along with the rest of my siblings and parents. I hope that our visit offered some comfort and support to my brother and his wife during this challenging and exhausting time.
On Wednesday we all met at the Children's Hospital and were brought into a special room to meet and hold Ella. There were two nurses, a hospital pastor, a special photographer, both sets of grandparents, Jason and Megan, and Me, Allyson, Angela and John. My two other nieces and nephew were also in and out of the room
The room was crowded, but quiet. After we'd all had a chance to hold Ella, my brother gave Ella a father's blessing. It was the sweetest thing I've ever heard.
We left around 12:30pm and Ella was taken off her heart medication and was not expected to live very long. Jason and Megan have kept faithful vigil at the hospital to be with their sweet little girl who will celebrate her 2 week birthday tomorrow.
At times like this I am grateful to know about God's plan for me and for all his children here on Earth. I know that because of Jason and Megan's marriage and sealing in God's holy temple, their family, every member, including Ella, will be together forever.